Service Science Passion

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Many Call It A Place Of Miracles

Strategic Plan


Table Of Contents

Introduction by the Executive Director

I. Executive Summary

  1. What Is Eden II?
  2. What Makes Eden II Different?
  3. Where Will The Agency Be In Five Years?
  4. How Do We Plan On Meeting These Goals?

II. Growth Projections

  1. Overall Growth by the Kind of Program Offered
  2. Growth in Core Programs
  3. Growth in Sustained Supports
  4. Growth in Adult Residence Capacity (an Ongoing Program)
  5. Growth in Community Outreach and Specialized Short Term Supports
 

Introduction by the Executive Director

This strategic plan serves two purposes.
  • First, it presents our five-year plan for programs…Our goal is to provide the maximum help possible to the autism community through education, adult day programs, residential care, family support, respite, and a number of other services. To do this in a practical way, we need to set priorities and to select the specific programs and program scope to be offered over time. This strategic plan presents those decisions.
  • Second, it provides a consistent long-term framework for making ongoing decisions…This is critical especially in the current environment of economic uncertainty. Without such a long-term focus, there is a very real danger of reacting to every real or potential change in condition.
This is not to say that we are locked in for five years to all the decisions reflected in this plan. Things change in ways that often make it impossible to achieve what we’d originally envisioned. Things can also change for the better, allowing us to do more. In either case, we are always ready to adjust our strategic direction. For this reason, we intend to revisit and roll forward our five-year plan each year.We trust that the transparency provided by the plan will provide parents, staff, and supporters a clear understanding of where we’re going and why.
 

- Joanne Gerenser

Executive Director

I. Executive Summary

 

A. What Is Eden II?

Eden II is an internationally known non-profit organization serving families living with autism throughout their lives. Services include school programs for youth, adult day and vocational programs, group homes, extensive family support, and community outreach.Autism is a devastating developmental disorder that disrupts an individual’s ability to communicate and relate to those around them. The incidence of autism continues to increase at an alarming rate. Today, one child in every 100 born has some form of the disorder. For families of people with autism, Eden II’s programs are a lifeline and a source of hope. Many call it a place of miracles.
The fact is autism is treatable and people with autism do learn.
As of October, 2010, the Agency had:
  • $26 million in revenues
  • $17 million in assets
  • 400 full time and 214 part-time employees
173 students in education programs in five locations…
  • 46 at Skyline Drive (Staten Island)
  • 64 at Granite Avenue (SI)
  • 25 at Forest Avenue (SI)
  • 8 at St. John’s Lutheran Church (SI)
  • 30 at St Piux (Long Island)
74 adults in the day programs…
  • 61 at Wright Avenue (SI)
  • 13 at St Piux (LI)
41 individuals in residences in six houses…
  • 10 at Carlton Boulevard (SI)
  • 6 at Dixon Avenue (SI)
  • 8 at Grayson Avenue (SI)
  • 5 at Collfield Avenue (SI)
  • 6 at Dix Hills Road (LI)
  • 6 at Cambon Avenue (LI)
539 individuals and families using other programs in SI, LI, and Brooklyn…
  • 88 – Waiver Residential Habilitation
  • 59 – Waiver Respite
  • 60 – After school Programs
  • 112 – Service Coordination
  • 250 – Family Support (summer day camps, emergency respite, special respite trips,parent training programs, clinical evaluation programs,…)
The Agency operates under the following names: “Eden II,” “Genesis,” and “Little Miracles and Eden II.” In addition, the Agency works closely with and receives significant financial support from the Eden II-Genesis Foundation (formerly known as the Foundation for Advancement of Autistic Persons).

B. What Makes Eden II Different?

There are a number of high quality programs
that provide science-based educational
services to individuals with autism. There
are also many programs that provide lifespan
support. Eden II is one of the few to offer
both in a highly integrated and coordinated
way.
 
Education Eden II uses Applied Behavior Analysis (ABA), an evidence-based approach in which systematic environmental modifications reduce inappropriate behavior and increase communication, learning, and social skills. For children with autism, who often have difficulty processing the world around them, controlling the environment is key. ABA is a widely used treatment for autism with more than 600 favorable peer-review studies on record. ABA is also recommended by the U.S. Surgeon General. Lifespan

Eden II offers many programs and services that promote a high quality of life for individuals and families living with autism. These include education, adult day programs, wraparound family-support (e.g. after school programs), weekend / holiday activities, summer camp, crisis intervention support, respite care, and parent training. The Agency maintains a number of residences where services and supervision can be provided 24 hours a day. The Agency’s Outreach Center supports the autism community at large with consultation and direct help to local school districts in New York City and Long Island.

Focus on Autism

Eden II is also different in that it is one of the few programs combining education and lifespan support that focuses exclusively on autism. This has allowed over its 30-year history the development of a significant body of expertise, highly effective feedback mechanisms, and a safe environment.

  • Professional expertise Eden II’s staff consists of well-qualified professionals, with long-term highly-focused expertise, who exhibit a deep passion for the work on a daily basis. They are frequently asked to give seminars and provide training to other US cities and international locations which in the past have included Australia, China, Sri Lanka, Ireland, and Canada.
  • Continuous improvement…The Agency continuously monitors its performance in both the education and lifespan areas using time-tested, quantitative and qualitative methods. These are then used to: evaluate individual and group outcomes, define changes in programs, refocusing professional staff, and set long-term goals.
  • Safety…The Agency actively manages its education and lifespan environments to ensure that these are as safe as possible for both consumers and staff. Most recently, Eden II was named as one of the top three companies to work for on Staten Island.
 

C. Where Will The Agency Be In Five Years?

Today, 1% of all children in the U.S. are born with some form of autism (1 of 100). The number of adults with autism is also increasing significantly as the children of the last generation reach adulthood. Eden II is committed to serving the needs of this growing community over the long term. This requires a plan with clear, practical, and attainable goals:
 
 
Improved outcomes for all core programs
Eden II achieves significant improvements with its current education and lifespan programs. But we can and must do better. This will be achieved by researching state-of-the-art practices, new evidence-based research, and consumer feedback and applying these specifically in the areas of teaching methods, the use of technology, and the range of vocational and recreational opportunities for teens and adults.
 
 
Twice as many families supported by the Agency
Eden II has helped more than 400 individuals and families living with autism. This includes those currently enrolled in an education or lifespan program as well as those supported over time with counseling, respite, crisis intervention, or other services so critical to the community. Over the next five years, Eden II will double the number of individuals and families supported through a number of new and expanded programs, including 125 new participants in family support programs, 35 new participants in the adult program, and 100 new participants in outreach programs.
 
 
Programs to address the communities under-served or unmet needs
These are a number needs in the community that are not being adequately addressed or not being addressed at all. Eden II will focus on these with a needs-analysis and develop new programs as required, including social-vocational training program for individuals with high functioning autism and Asperger’s disorder, intensive behavioral services for those individuals and families in crisis, and expanded opportunities to include students with autism who are mores significantly challenged than their typically developing peers.
 
 
Supporting the aging out population in adult program and residential program development
We must dramatically increase the capacity of the adult program given the accelerating need in the community and to remain committed to lifespan services. We plan to expand the adult services program by at least 30%. In addition, we must continue to work actively on securing approval for the development of new residential opportunities to address our long wait-list for these services. We will also explore and develop alternative solutions to meeting the residential needs through expanded home support and services.
 

D. How Do We Plan On Meeting These Goals?

To achieve its goals, the Agency has or soon will initiate the following actions. It also foresees the need to initiate other actions in the future that are called for by its ongoing analysis at a rate consistent with the available funding and the direction of the community
 
 
Identify the key program outcomes and define 5-year targets for each
Improve the existing outcomes for all programs and define the 5-year targets. Ensure that viable mechanisms are in place to track these results and effect the changes they demand.
 
 
Acquire 50,000 square feet of usable space for Staten Island programs
We must have at least 50,000 square feet of usable space in Staten Island. To achieve this, we have identified a site, launched a $7.5 million capital campaign, and initiated activity to design the space needed for classrooms, a conference center, recreation areas, vocational training rooms, and consumer-staffed storefront business.
 
 
Acquire 25,000 square feet of usable space for Long Island programs
We must have at least 25,000 square feet of usable space in Long Island. To achieve this, we have identified a temporary site and launched a $2.0 million capital campaign. This space will be used for classrooms, an autism outreach center, vocational training rooms, library, computer room, and therapy rooms.
 
 
Define key management outcomes and define 5 year targets for each
Enhanced infrastructure will be needed to achieve the goals of the 5-year plan. These will be identified over time and added as funding becomes available.
 
 
Implement programs addressing the unmet and under-served needs of the community
Research, define, design, and implement programs as required to meet the growing needs of the autism community in under-served areas, including HFA/Asperger’s individuals with severe behavior disorders, adults day programs, residential opportunities and an inclusion based programs.
 
 
Re-brand the Agency
The capital campaigns and increased community involvement require a larger support base. To achieve this, we will initiate a re-branding effort which includes: a name change to eliminate the confusion caused by multiple “Edens,” new tag-line, new logo,…
 
 
Improve key Agency incentive, feedback, and compensation programs
A number of key management programs need to be improved to achieve the level of performance demanded by this 5-year plan, including: staff and consumer satisfaction surveys, goal-based performance appraisals, formal succession planning, performance-based compensation programs, longevity recognition awards, spotlight awards, and a formal staff communication program (Newsletters, website,…).
 
 
Enhance Development Capacity
The Agency will enhance fundraising through improvement of existing events and diversification into new areas such as planned giving and direct mail. In addition, public relations and marketing will be enhanced through improved website, new newsletter, and development of electronic newsletter.
 
 
Make a decision on “Brooklyn Expansion”
The question of expanding Agency programs into Brooklyn has been raised for serious consideration. We need to complete the analysis, review the feasibility, and make a decision.
 

II. Growth Projections

Eden II has an aggressive plan for growth over the next five years. The plan specifically targets those areas where help is most urgently needed while recognizing the real-world limitations we face.We know that autism is treatable and people with autism do learn. We also know that an early investment in the individual has an enormous payback for them, for their families, and for the community. Because of this our standards of care are high. We believe that compromising these standards to accommodate larger numbers of participants hurts everyone.Accordingly, it is essential that we address the real-world limitations that we expect to face in the next five years in our planning. The most critical of these is the lack of experienced teachers, health-service workers, care-givers, administrative staff, and other skill personnel essential in helping people with autism. Closely tied to this is financial support. Public and private revenues over the next five years are expected to grow at a slower rate or remain flat.

Despite this, we believe that we can help twice as many people with autism in the next five years if we carefully target our areas of concentration. This means keeping participation in some programs flat while increasing participation in other areas. The explanations and graphs that follow illustrate these decisions.

What the graphs cannot show is the qualitative improvements planned for all of the Agency’s programs and our ongoing commitment to help everyone who asks for help in some substantive way (e.g. through counseling, referrals, intervention, representation…) even if that help is not part of a formal program.

A. Overall Growth by the Kind of Program Offered

Eden II offers three kinds of programs:
Core Programs,including Educational, Adult Day, and Residential services which represent the heart of the Agency’s offering to the community of individuals with autism and their families. Sustained Supports,including after school, Respite, Habilitative, Coordination, and Consultative services, which supplement the Core Programs both for those receiving Core Program services and for those who are not.Community Outreach and Specialized Short Term Supports, including OPWDD-funded services such as the “Parents-as-Partners” training programs, clinical evaluations, crisis intervention programs, as well as private-pay consultative services. These time-limited supports are for those who do not receive core services.
 
Our emphasis over the next five years will be in the areas of a) Sustained Supports and b) Community Outreach and Specialized Short Term Supports, which are projected to increase overall participation by 37% and 149% respectively. This will significantly widen the Agency’s footprint, allowing us to reach twice as many people as in 2010.
 

Growth in the Core Programs for children (preschool, school) will be more limited and primarily focused on improving existing programs rather than increasing capacity.

(Please note that these numbers count the participants in each program and that the same individual or family may be included more than once if they participate in more than one program. Also note that the numbers include program turnover and churn as many individuals enter and leave programs as their individual situation requires. Every effort has been made to normalize these impacts so that the numbers are an accurate representation of both the effort required for the program and the number of people and families helped by the program.)

 

B. Growth in Core Programs

Eden II has been serving people with autism for 30 years. This means that a larger and larger number of participants are graduating from our programs and needing adult-oriented services. This is an under-served area in the community and one in which we feel it is essential for Eden II to provide increased support.Accordingly, our five year plan is to increase capacity in adult day services offered in both Staten Island and Long Island and to maintain the existing capacity for preschool and school-age educational programs. This is shown in the following graphs:
 
We expect to conduct research into the latest learning techniques especially in the use of technology; upgrade the quality of our core programs; and disseminate information on effective practices to help others most effectively meet the needs of people with autism.
 

C. Growth in Sustained Supports

Funding for residential opportunities is limited. We must therefore find more creative and more cost-effective ways to support people with autism and their families. We expect to increase our capacity to provide various respite programs by about 30% over the next five years, helping to better met needs of those already serviced, and provide significantly increased access to supports for others in need. Continued but more gradual growth in other types of sustained supports is also expected. This is shown in the following graph.
 

D. Growth in Adult Residence Capacity (an Ongoing Program)

The Agency is committed to providing a full range of lifespan services for persons with autism. One of the most critical of these and one that is desperately needed by many families is community-based residential options for adults with autism (especially those with difficult behaviors which make continued care at home especially challenging). We intend to increase our capacity for full-time adult residence by about 40% in Staten Island and Long Island, but only in 2015. Until that time, despite our recognition of the level of need and commitment to help wherever possible, we expect state resource limitations will require us to keep the number of adult residential opportunities flat.
 

E. Growth in Community Outreach and Specialized Short Term Supports

The Agency offers a number of programs to those who do not participate in the Core Programs, including access to specialized clinical evaluations and consultations, parent training programs, and crisis respite services. Our capacity for these is expected to increase by more than three times over the next five years as shown below.

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